About Us

We're here to transform the lives of people affected by neuromuscular disease.

Welcome to the MDA Press Room

Raising awareness about how muscular dystrophy, ALS and related neuromuscular diseases impact the families we serve is critical for educating people about the urgent need for action and support.

For Media Inquires 

Mary Fiance
Director of Public Relations and Communications
[email protected]

Nancy Intrator
Director of Corporate Communications
[email protected]

Media Support

MDA is here to provide assistance with local or national stories about MDA, our lifesaving research and treatments, family stories/interviews, treatment protocols, expert perspectives on diseases in MDA's program, fundraising events, corporate partnerships and other issues related to muscular dystrophy, ALS and related neuromuscular diseaes. Email [email protected] for assistance.

Guidelines for Reporting & Writing about People with Disabilities 

Recent Press Releases